儿童亲体肝移植照顾者情绪影响因素及与社会支持的相关性研究

肝脏 ›› 2025, Vol. 30 ›› Issue (10): 1424-1429.

儿童亲体肝移植照顾者情绪影响因素及与社会支持的相关性研究

庞璇, 陆晔峰

200030 上海上海市胸科医院/上海交通大学医学院附属胸科医院(庞璇);200127 上海上海交通大学医学院附属仁济医院护理部(陆晔峰)

收稿日期:2024-08-27 出版日期:2025-10-31 发布日期:2025-12-16
通讯作者: 陆晔峰,Email:yefenglutwo@126.com
基金资助:
上海交通大学医学院护理学科人才队伍建设项目[沪交医护(2022)1号];上海市护理学会2023年优秀青年人才育苗计划[沪护会(2022)20号];上海交通大学中国医院发展研究院2025年度研究课题(CHDI-2025-A-14)

Influencing factors of emotions for caregivers of children with living-related liver transplantation and its correlation with social support

PANG Xuan¹, LU Ye-feng²

1. Shanghai Chest Hospital, Shanghai Jiao Tong University School of Medicine, Shanghai 200030, China;
2. Renji Hospital, Shanghai Jiaotong University School of Medicine, Shanghai 200127, China

Received:2024-08-27 Online:2025-10-31 Published:2025-12-16
Contact: LU Ye-feng, Email:yefenglutwo@126.com

摘要/Abstract

摘要： 目的调查儿童亲体肝移植照顾者情绪及社会支持的现状,分析照顾者情绪的影响因素,并探讨其与社会支持的相关性。方法采用横断面研究设计,通过便利抽样法选取2022年1月1日至2022年12月30日于上海市某三甲医院224例儿童亲体肝移植照顾者为研究对象。以一般资料调查表、社会支持评定量表(SSRS)、简明心境量表(BPOMS)为研究工具进行问卷调查。结果儿童亲体肝移植照顾者积极情绪得分为(10.42±4.75)分,消极情绪得分为23.00分(9.00～42.00分),社会支持得分为(40.81±8.88)分;社会支持与积极情绪呈正相关(r=0.283, P<0.01),与消极情绪呈负相关(r=-0.284, P<0.01);社会支持对照顾者的积极情绪有显著影响(P<0.01);社会支持、工作状态及是否负债对照顾者的消极情绪有显著影响(P<0.05)。结论儿童亲体肝移植照顾者积极情绪与消极情绪并存,积极情绪水平中等,消极情绪水平较低,照顾者社会支持水平一般,增加社会支持有助于改善照顾者的情绪状态。

关键词: 儿童肝移植, 亲体肝移植, 照顾者, 社会支持, 情绪

Abstract: Objective To investigate the current situation of emotion and social support among caregivers of children with living-related liver transplantation. Analyze the influencing factors of caregiver emotions and explore their correlation with social support. Methods A cross-sectional study design was conducted using convenience sampling to sellect 224 caregivers of children undergoing living-related liver transplantation who were treated in a tertiary hospital in Shanghai from January 1, 2022 to December 30, 2022. The General Information Questionnaire, Social Support Rating Scale (SSRS) and Brief Profile Mood States (BPOMS) were used as research tools to conduct the questionnaires. Results The positive emotion score of caregivers was (10.42±4.75) points, the negative emotion score was 23.00 (9.00, 42.00) points and the social support score is (40.81±8.88) points. Social support was positively correlated with positive emotions (r=0.283, P<0.01) and negatively correlated with negative emotions (r=-0.284, P<0.01). Social support had a significant impact on positive emotions of caregivers (P<0.01). Social support, work status and debt status had significant effects on negative emotions of caregivers (P<0.05). Conclusion Caregivers exhibited both positive and negative emotions, with a medium level of positive emotions and a low level of negative emotions. Social support for caregivers was moderate, and increasing social support can help improve their emotional state.

Key words: Pediatric liver transplantation, Living-related liver transplantation, Caregivers, Social support, Emotion

庞璇, 陆晔峰. 儿童亲体肝移植照顾者情绪影响因素及与社会支持的相关性研究[J]. 肝脏, 2025, 30(10): 1424-1429.

PANG Xuan, LU Ye-feng. Influencing factors of emotions for caregivers of children with living-related liver transplantation and its correlation with social support[J]. Chinese Hepatolgy, 2025, 30(10): 1424-1429.

/ 推荐

参考文献

[1] Kehar M, Parekh R S, Stunguris J, et al. Superior outcomes and reduced wait times in pediatric recipients of living donor liver transplantation[J]. Transplant Direct,2019,5(3):430.
[2] 朱俊,王艳,陆晔峰.小儿活体肝移植健康管理责任承担的现况调查[J].全科护理,2018,16(33):4199-4200.
[3] Folkman S. The case for positive emotions in the stress process[J]. Anxiety Stress Coping,2008,21(1):3-14.
[4] Han J W, Jeong H, Park J Y, et al. Effects of social supports on burden in caregivers of people with dementia[J]. Int Psychogeriatr,2014,26(10):1639-1648.
[5] 肖水源,杨德森.社会支持对身心健康的影响[J].中国心理卫生杂志,1987,4:183-187.
[6] Lorr M, Mcnair D M, Fisher S U. Evidence for bipolar mood states[J]. J Pers Assess,1982,46(4):432-436.
[7] 迟松,林文娟.简明心境量表(BPOMS)的初步修订[J].中国心理卫生杂志,2003,17(11):768-770+767.
[8] 陈颂歌,韩景怡,李蕊.心功能Ⅳ级慢性心力衰竭患者主要照顾者照顾反应与社会支持的相关性研究[J].中国临床护理,2021,13(4):201-206.
[9] 陶子军.儿童亲属活体肝移植供者压力与情绪的关系:希望的中介作用[D].中国医科大学,2022.
[10] 董丽,卢芳燕,吕斐翠,等.儿童亲属活体肝移植供者兼照顾者照护体验的质性研究[J].中华护理杂志,2022,57(12):1494-1498.
[11] Rodrigue J R, Dimitri N, Reed A, et al. Quality of life and psychosocial functioning of spouse/partner caregivers before and after liver transplantation[J]. Clin Transplant,2011,25(2):239-247.
[12] 姚树桥,杨艳杰.医学心理学[M].8版.北京:人民卫生出版社,2018:189-190.
[13] 闻吾森,王义强,赵国秋,等.社会支持、心理控制感和心理健康的关系研究[J].中国心理卫生杂志,2000,14(4):258-260.
[14] Düken M E, Zengin M, Yayan E H. The effect of perceived social support on the psychosocial status of parents whose child had liver transplantation[J]. J Pediatr Nurs,2022,66:e130-e136.
[15] Dalgard O S, Bjørk S, Tambs K. Social support, negative life events and mental health[J]. Br J Psychiatry,1995,166(1):29-34.
[16] Pourmand V, Lawley K A, Lehman B J. Cultural differences in stress and affection following social support receipt[J]. PLoS One,2021,16(9):0256859.
[17] 曹小花,杨华.心理弹性与自我效能在恶性肿瘤患者主要照顾者社会支持与正性情绪间的中介效应[J].中国社会医学杂志,2019,36(5):480-483.
[18] 张敏,崔焱,李相成,等.肝移植患者家属心理状况与生活质量调查[J].护理学杂志,2007,22(16):4-6.
[19] Hoffman G J, Wallace S P. The cost of caring: economic vulnerability, serious emotional distress, and poor health behaviors among paid and unpaid family and friend caregivers[J]. Res Aging, 2018,40(8):791-809.
[20] 何婷,滕小芸,杨巧玲,等.儿童肝移植供体照顾负担现状及影响因素分析[J].中国医药导报,2021,18(35):72-75.